Tuesday, October 6, 2009

Facebook | Tory Kennedy: abby update

Abby is well. no real new changes. we finally got into the doctor at Nemour's. I love that place. It is about 2 hours from here in our home in Georgia. I thought that they had all the records from when we are at Arnold Palmer but noooo, that is not the case. I will be working on that today. After they get those, they will be able to schedule her surgery. It is going to be a few more weeks. One thing is scheduling. Two, is they want to look at all her workups and tests before cutting her open so they can see it first hand and not just go by what somebody is telling them. THree, her doctor wants to talk to the surgeons and see who has done is it laproscopically which would be ideal. He also wants to see who has had the best and and most experience with this surgery. All the surgeons here are new...been practicing 3-4 years. Did i mention achalasia is very rare, especially, in children. So needless to say we are making another round of surgeons as excited as a preteen at a Jonas Brothers concert. THis however does not excite me in the least. I am constantly reminding myself that God is in control and He has this. He knows the outcome. He has got my back and my kid's back and worrying about it is just me trying to be "god" and not trusting Him that he actually does love and care for Abby more than I ever could possibly do.

I really love her new doctor, Dr Evans. He assured me that he would make sure he would research all the ped surgeons and get us the most experienced one. So with that being said we will be seeing him in 4 weeks. The only thing that we are doing differently with her eating is she is not allowed to eat anything within 2 hours of bedtime. The reason. If she eats before bed then all her food just sits in her esophagus just moving up and down and this could cause lung problems. This is not only bad infection wise but would make the anestheiologist not very happy if she is not breathing properly come time for surgery.

Here is what I want prayer for.

Complete healing before surgery begins. I still serve a God that does miracles and am choosing to believe that He still will. However, it is His will, not mine. COmplete healing before may not be the answer to our prayer but I am choosing to believe and pray that boldly

for abby to have peace and trust in God that she is going to be ok. that she does not need to fear surgery. That God would use this time to bring her to a closer relationship with Him and see Him in ways she never otherwise would. That she would be comforted when she gets angry, stomps her feet, cries, because she cant eat all her favorite foods. Believe me I want to do all those too. I do, just mostly in my head.

For us, to continue to believe that God is in control. To seek Him in all decisions we make with this. To not trust human knowledge more than God knowledge. to accept whatever the plan is even if we think it sucks and is not what we want. To live completely and 100% by faith and trust in Him to meet our needs (I say needs not what I want or what I think a need is)

that the other two will be sympathetic to their sister and not be whiny when I allow Abby to have ice cream more than them. that they would not blame her for it being what they think is unfair. that they would just love her and comfort her through this.

No comments: